Tuesday, May 3, 2011

Red Cedar's Experiment with Fragrance-Free Seating

My Quaker meeting is working on accessibility issues related to fragrances, which some people (like me) have sensitivities to and which can also trigger or exacerbate migraines and asthma. It's been a surprisingly vexed conversation over the last six to nine months, and there are a lot of tender feelings. At our last business meeting, we talked about the issue for a long time, and I and at least two other people with sensitivities spoke. That was my first surprise: I hadn't realized I wasn't alone in this. It was so good to hear other people talk about having the same kinds of experiences I did, like being pulled out of worship to wonder if you'll have to move when a late-comer seems likely to sit near you. Or how hard it can be to address this issue in personal relationships. But how had I not known? Had I not been listening?

We clearly had other failures of communication as well. Toward the end of that conversation, one member said that this was the first time it had occurred to him that we were actually discussing a health issue. I guess he thought we'd been talking about preferences, or a more general wish to be environmental, to be as clean and toxin-free as possible. I was glad that people heard things that shifted their perspective, but I said to David later, "Where have we failed in talking about this if this is the first time people figured out it was about people's well-being?" It surprised me to learn that we had been, at least to some extent, talking past each other. No wonder feelings were hurt and progress was not made. I wonder if we have more clarity now and that will help us move forward.

Anyway, one thing we're experimenting with is designationg one-fourth of the meeting room as fragrance-free seating. This was a hard decision to make; it was actually minuted back in December and then held back from implementation because of strong concerns raised later. My concerns were pretty pragmatic: I'm not sure our meeting room is large enough for designated seating to be effective, and I was worried that people would think that FF seating solved the problem, so nothing more had to be thought about or done. I also was concerend about partial access--even if FF seating made worship accessible to me, what about the hallway, the library, the social hall, the classrooms?

Others' concerns were more spiritual; one Friend put it very well when he said he was not comfortable with having different Friends seated in different parts of the room, with setting off a separate group. Quakers have always been one body, he said, one community. He said it better; it was moving, and I thought he was not wrong. Another Friend was concerned that saying that only people who were FF could be in this seating area sent the message that some people were "pure" enough to be there and some people weren't.

We eventually decided to go ahead with FF seating, in a spirit of experimentation, and to discuss it again in about six months, after we've lived with it for awhile. This is not the only action we've taken. The Building & Grounds committee has been very pro-active, providing FF hand soap and informational signs in the bathrooms (I commended one member of the committee on the wording of the signs, and she looked at me funny and said, "Well, good. We got it from a link you sent us"). I'm attending a yearly meeting event at the meetinghouse this Saturday and was heartened to see that the organizers were asked to include a note about fragrance and accessibility at the Meetinghouse in their materials.

I sat in the FF seating for the first time on Sunday. I will say that, after one trial, it felt pretty crappy. On the one hand, it was the first time I've ever been in worship at the meetinghouse (which is 13 months old) and not had an exposure, so yay for that. On the other hand, for about the first 15 or 20 minutes (maybe not that long; maybe it just felt long), I was the only one in the FF seating. The other three-fourths of the meetinghouse was pretty well populated. I felt isolated and conspicuous; I also felt discouraged that there was not one other person in that room who had taken our conversations about fragrance so much to heart that they had stopped using scented products on Sunday mornings. It hurt my feelings. In my whole life, nobody but David and Scott, who are the two people besides my children who love me the most in all the world, has ever gone fragrance-free in support of my well-being. I don't know why. I do know that it would be like the best present I ever got times 10 if somebody did.

Eventually, two other women who are also sensitive to fragrances came in and sat in the FF seating with me, and I felt less alone and conspicuous but still set apart and visible in an uncomfortable way. We might as well have been wearing a sign saying THESE WOMEN HAVE CHEMICAL SENSITIVITIES! I had optimistically imagined myself camouflaged among some number of non-sensitive folks who were nonetheless fragrance-free. Alas, no. (One of the women's partners joined us at the rise of meeting; she'd been in another part of the meetinghouse during worship.)

That's just one day. I agreed to the experiment and I'll stick with it. It may get easier as I get used to it. Maybe we'll have a slow migration into FF seating as people experiment with unscented products, and it will get easier that way. It certainly seemed successful from the perspective of exposure and illness. Maybe even if I don't become emotionally comfortable sitting there I'll decide the trade-off is worth it; if I can't have both physical well-being and emotional comfort in worship, maybe physical well-being is the better part. Maybe it's good not to be too comfortable, and my discomfort will bear unexpected fruit. It remains to be seen.

This is not the blog post I sat down to write. Funny how that happens sometimes.

6 comments:

  1. It might be they didn't try to go FF and were trying to protect you. It might be they were trying but, adapting to the lifestyle change, weren't sure if they'd pass the sniff test. It might be many were diligently trying to adapt to make you welcome in worship *but* imagined the designated FF seating "reserved" and didn't want to squander such a limited resource on people like them so didn't require it for worship.

    As the communication *is* getting through, I'd urge to you bring up your feelings about isolation. If I were a Quaker I'd be delighted to sit near you. :-)

    Take gentle care,
    Cheryl

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  2. Cheryl, you're definitely right. One thing I have heard from more than one person is that they have a lot of anxiety about whether they're "unscented" enough--some people might have very diligently done their best and stayed out of FF seating for fear of having not quite done well enough.

    I was someplace the other day and my shirt picked up perfume from the environment. I remember thinking, "Ha, if I went to worship now, I couldn't sit in FF seating--I'd be too worried that I'd trigger somebody."

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  3. Once again, your experience and that of the meeting closely parallels what some in my own monthly meeting have been wrestling with for years.

    We still have one Friend that I know of who insists that people with chemical sensitivities are just making it up! Arrgh!

    What's been helpful to me, personally, is when a person with MCS gives examples of how to approach her or him, such as, "It's okay to say, 'I've done my best to be more aware of avoiding fragrances-- but I'm still not sure I'm safe yet.'"

    By having samples of language like that, I feel it's easier for me to at least begin talking about how safe I am.

    It also may help to clarify and make explicit that if worshipers are FF and *don't* have sensitivities, they should please join Friends on the FF bench so there is a sense of community.... if not a sense of bearing witness!

    Blessings,
    Liz Opp, The Good Raised Up

    P.S. I'd be interested in sharing the text of your blogpost (not the comments) with my meeting's newsletter editor for possible reprinting. Would that be okay, if a link here were included, along with your name and meeting?

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  4. You know, this one's funny for me, too. I'm extremely sensitive to some fragrances, sometimes, but, well, my shampoo has fragrance. (I am large, multitudes, yeah, that. Also, it actually gets my hair a little less crazy-looking. Um, yeah. Really, I have no excuse.)

    So, I wouldn't feel comfortable using fragrance-free seating for fear of triggering someone else's migraines. And, on the other hand, I wouldn't feel safe, no matter what, in what other people thought was fragrance-free, if I were on a bad day.

    Hm. I'll spend some time thinking on this.

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  5. We have several folks who are sensitive to fragrances in our GR meeting, so when we decided to try to be a reduced-fragrance meeting, we framed it as a health issue. And your blog was very helpful! I need to put a reminder in our Mtg blog about it, as we have many newer attenders who don't know. But anyway, I hope it'll work out in your Mtg. When Amy & I visit (no plans in the works), we'll be with you.

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  6. Just... as always, thank you. {heart}

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